Quality of Life Tips
- Maintain a consistent daily routine to reduce stress and uncertainty
- Stay connected with family and friends for emotional support
- Join support groups to connect with others who understand your experience
Welcome to the TED Community
Support and Connect with Others Living with Thyroid Eye Disease
Understanding TED
What is Thyroid Eye Disease (TED)?
Thyroid Eye Disease (TED), also known as Graves’ Ophthalmopathy or Thyroid Orbitopathy, is an autoimmune inflammatory disorder affecting the orbital tissues around the eyes. It is primarily related to Graves’ disease, but TED is a distinct condition requiring different treatment.
- Affects up to 50% of people with Graves' disease¹
- Approximately 1 in 10 TED patients develop it without having Graves' disease
- Can occur in people with hypothyroidism or normal thyroid function
- More common in women, typically between ages 30-50
Emotional Well-being
Managing Body Image
- Accept that changes are part of the journey
- Focus on what your body can do
- Connect with others who understand
- Consider counseling for self-acceptance
Travel and Accommodation
Pack eye drops and medications
- Bring extra sunglasses
- Place towels on pillows for comfort
- Request rooms away from elevators
Breakthroughs in Thyroid Eye Disease Treatment
As of mid-2025, ongoing research continues to unveil promising new avenues, offering hope for improved outcomes for those living with this challenging autoimmune condition.
Join Our Online Community
Connect with other TED patients in our private Facebook group. Share experiences, ask questions, and receive support from people who truly understand your journey. Private and secure environment • Moderated by neutral leadership • Patient-led discussions • Regular expert Q&A sessions
Latest Articles
We explore some of the latest news about the disease and possible treatments.
Because together, we're stronger in the face of rare diseases.
Living with a rare disease like TED can seem overwhelming, but you're not alone. Joining our community means finding a place to listen, share and support with people who understand your day-to-day challenges.
⚠️ Disclaimer
This information is for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
References
1-Thyroid Eye Disease (TED) is a well-recognized autoimmune disorder distinct from Graves’ disease. It affects up to 50% of patients with Graves’ disease, but around 10% of cases occur without it, including in hypothyroid or euthyroid individuals. Women between 30–50 years are at highest risk.
Bartalena L, Kahaly GJ, Baldeschi L, et al. The 2021 European Group on Graves’ orbitopathy (EUGOGO) clinical practice guidelines for the management of Graves’ orbitopathy. Eur J Endocrinol. 2021;185(4):G43–G67. doi:10.1530/EJE-21-0479